I titled this blog the 3 Amigos because often Vulvar Vestibilitis, Pelvic Floor Dysfunction and Interstitial Cystitis occur together. The researchers arent really sure why. All three of these conditions get very little exposure- many physicians dont know much about them either. I have created this blog after being inspired by a fellow blogger- It is time I told my story.
Sunday, December 22, 2019
now pain with sitting
so since that bad pt session i now have pain with sitting back again...something is off as i haven't had thisnis years . i'm not doing well at all... i just force fed myself some chicken and a sandwhich but to be honest i could go days without eating.
i can't calm down my nervous system for the life of me ... the pain is ten times my baseline it's horrific ..it's foreign and it's scary as a heck...
i've ordered twice from a local place using uber eats ..ironically the same delivery guy...after the last delivery and him thanking me i just thought the guy has no clue i just dragged myself out if bed and will eat and then climb back into bed ...i tipped him the usual amount probably more than most would given all those added fees... i figure he's nice enough, not bad looking and who knows what pain he hides . the food is good actually and it's better than force feeing myself ....but the price along with the suddenly added pt expense is too much ...
i know by laying in bed all day i'm most likely making myself worse but i can't sit now ...i'm scared ...i wasn't that bad and now i'm so much worse in pain for well over a month...and with pain u never want it to go this long soon it will be chronic
it's a deep pain coming from my back
tomorrow i'm seeing my dad's friend who does massage it's not cheap and yhenirony my dad's the reason i missed the last pt session
i still cry everyday , i still wonder what really happened , i still look for an email or text from her
i'm no stranger to people that treat me getting sick.. years ago word reached us fast a well known dr had cancer
another dr office sent out a letter that due to his divorce he had a breakdown and retired ..later an attorney told me he lost it on the stand during a court proceeding
this though this with my pt this is different
this was plotted and thought out ...they knew doe two months
they let her treat while being not well mentally not stable
when thenownwr says thenpt didn't tell a soul she means herself she is projecting
she knew as an owner and didn't tell us ... she allowed us to still schedule and her pt was due to leave in december
she didn't give a frack and i hope someone sues because i doubt no one will be injured because of this whole mess
if she was so ill then i'm sure she harmed someone the owner told me the pt wouldn't have been able to help me
and i was too shocked to say oh really so u let her treat ill isn't that a liability ?
they are scum of the earth
i still have no records going on a month now ... they are evil pos
i'm mad at the pt too knowing how i needed her couldn't have been upfront with me ...was so ill yet replied right away a week prior on her day off
you all are such trash honestly i have no respect ...if it was sudden i would get that ...it wasn't you just didn't care about me
you lied perhaps the office should have told up
i'm now way worse , worse than i've been in years ...the pt has no fracking care all i was is a number all an act for years
betrayal is what it is....after i get my records i'm going to a library and writing a review i don't wat patients thinking this office is top notch it's piss pour
Tuesday, December 17, 2019
made worse by Pt #2
went in for jase and neck issues mention i had slight burning which is usually the pubic bone
Pt the whole time asks how former pt treated me so when i tell he her she says oh i don't know how to do it that way this way works and laughs as she uses the shotgun method and leans into my bad side where the app flared to begin with
then she has me resist her hands and i felt a pelvic floor tug
for those with pelvic issue in remission you know what this is like as the nite went on i was sore and the next days next full blown agony,
can't walk, sit, lay down etc
owner was defensive and said i its pribabky bevause it was never in place like that in years ...i disagree
she also said the PT couldn't put the pelvis back just with massage.
they went from being open to very defensive once i questioned something which is disappointing. they said i expected too much in an hour... no i expected not to be made worse and be worse as the days go on
i'm no newbie to flares but for me i flare after and then get relief
today i was so dizzy i fell into my bed
i'm scared i'm worn and i just need this fixed that they made worse
my pt never used these harsh methods she said they weren't needed st all for me so now i suffer she ghosted us all won't reply to reply to emails and i'm losing respect honestly
what i think is she didn't feel mine was an alignment issue pts ask me my home program for corrections ....i had none but s leg pull i wasn't off or out we had that stabilized so noe i'm in panic mode worse by the day
some friends say it's my CNS because i just went thru s huge loss of losing her but i was ok until adjusted everything is so tight i can't even move
tomorrow is Pt #3 to see if they can fix what they made worse
my pelvis used to feel free now it doesn't
for years the pt i saw focused on being aligned and over corrected me i never got better with her
i'm really worried tonite all these pt keep questioning me and why i saw he her dour this year everything is questioned
all i want is my baseline back then i'm stopping for the winter months i mentally can't take much more of it
Friday, December 6, 2019
i returned and will never go back
it was odd being back ..back where you helped me so much. the dog greeted me as if it knew .
the session was not good...she's not you.
i feel like i had nothing done. she put her hands in my mouth
and tried again to put her hand in my mouth to pull up on my head but i stopped her
i would not be injured again
i feel like i wasn't even treated , i'm not aligned, my pain is bad going on a month
she told me they knew since fall... but why on earth did she not tell patients you were struggling so we could have gotten in.
she brought you up and talked all session about you, so i paid for her to speak on you.
i didn't know what to say honestly ...she's et in her ways she believes you didn't give us proper care and the rest i won't post publicly.
i'm angry at her for not notifying us
she said your personality has totally changed and you won't reply so don't expect it
so i'm left with no PT that can help ...i'm devastated.
i'm trying to make sense of it and i never will blame you ...i'm sad after so long you are gone but i blame her...she should have let us all know you were ill.
she's replaces you already...but i won't be back...
i'm stunted why she has such a great reputation she's nothing like you and she's just so much toxic drama .
so here i am ...i never saw this coming ... i'm lost, i'm scared....there is no one in this area that seems to know what you did.
i found some people you worked with and i'm going there ...trusting you gave them guidance
but i'm in pain and i'm lost ...and i keep praying i find someone .
yes you left us all to find someone but she should have told all of us ....i never would have reschedule and i would have been helped and not stuck.
you weren't just my PT..you were my pcp, my advocate and my friend
i'm sorry you were badmouthed and made to look bad ... it's not right what she's doing not at all.
i will keep praying that you resurface but until then i have to try and direct someone to treat me ... but i'm so lost
i don't understand why this happened the universe is cruel.
ps i quit the cafe
Wednesday, December 4, 2019
not sure what to title this
i've spent the last two days practically all day researching a replacement .
todsy i took a call at 9pm from one potential replacement
the cost is a huge issue with me and they mentioned they do a lot of tissue work, which in the past has flared me
my pt knew from the start how to treat me
i'm sure she flared me a few times but it isn't something that sticks in my mind
lately it was just other issues popping up right after the session discs out...lack of rom
i didn't flare for days
i don't think i need all that muscle work nor do i want it i just want the quick massage and joint glides
tomorrow i will return to the office and she won't be there ...it will be odd and sad and i will see how she treats
i heard again her bedside manner is not warm and fuzzy
i just wonder if the pt knew this when she started there or if it began to drag her down as the days went on
being ghosted is tough what's even tougher is trying to find a replacement
i wish i had asked her who she would suggest but i never thought she would up and leave
my gut says soon the truth will come out , probably sometime next year
so tomorrow i just hope i can get out of pain and she's open to listen to how i was treated
Monday, December 2, 2019
today's call and trying to regroup
I spoke to her today and she was cold like I always thought as i was warned about .
you had no idea of knowing of course you were new to the scene...you fell for it all.
it wasn't an easy call today... i had all i could not to defend you ... if you really are ill it's not your fault you kept bad records
that's not on you.
i was told seven weeks ago you knew, they knew .... everyone but us knew .
why couldn't you tell me? why didn't they?
they tried to get me for a longer session i declined...i expressed why i declined
they didn't care nor try to work out payments
it's not my fault either
as she spoke the words to me that she abandoned everyone , she must be hurting as this is not like her.
she wasn't keeping good records
i asked how long it's been going on and then
yea it's not like her .... but i followed the trail
7 weeks puts you back to where you vanished and i had to see a body worker ..more money and then see you
we talked about the body worker and my symptoms l..i didn't ask how you were feeling there was never much time.
you looked ok to me.... did you not know then?
or was it whatever was bothering you why the session messed up twice?
did the staff know and continue to lie and hide it from us?
i didn't like her tone and i didn't like her saying she is better than you
i didn't like how she has no direction about my care...the special plan you and i developed
were you that sick for seven weeks you couldn't develop a plan?
you texted with me just ten days ago and never even said a word again hiding it from me .... i didn't deserve to know?
none of this sits ok with me as i still cry daily off and on and at times am so overwhelmed trying to find someone to get me out of pain
you had seven weeks , she had seven weeks... yet no care plans were developed?
makes no sense at all ... even if you had one month left something needed to be in place
abandonment does something to a person...to leave with no goodbye and just ghost patients is horrific really
i plan on going in keeping my mouth shut and hoping she doesn't make me worse
i'm kinda mad tonite ...8 years of me trusting you and in the end i'm tossed like trash
and she, she has no records ...like seriously
the truth will come out...i plan on finding it out my own way ...
nothing like being left with no plan of care and no PT and they all knew
Thursday, November 28, 2019
I lost my PT this week ..devastated is an understatement
you all know how it goes as a chronic pain patient. you're going along living your life the best you can. you work hard to build a great team of medical workers to help you.
then one day your dealing with some pretty bad personal issues which has left you with no help doing the tasks you can't do
so instead of keeping the PT session you wake up and text asking to reschedule and to your relief they have an opening for the following day.
so you go about life ...struggling in pain and new pain from doing stuff you shouldn't have to fit it all in before PT
the next day your alarm goes off and you wake up and know you have to go drag laundry that you used to have help with.to a laundramat
you get a text soon after the alarm
we are sorry but pt is sick today we have to cancel,
i take a breathe and reply ugh, ok when's the soonest i can get in
pt already knew i was in a bad flare as i had texted her just five days prior if that
my gut sensed something was off...she's never sick
i push on with my life ...resting looking for someone to hire to help me
the weekend passes and i rest as much as i can take half the laundry to get done
monday i'm waking up and get the text that changed my life as i knew it for the last eight years
at first i just thought they were canceling again, but i opened it and my hands shook.
wtf effective immediately she has resigned
i couldn't believe it so i call the office ...the office had no plans for my care, she was supposed to work until the end of the year
i'm mad ..but i cry instead and i'm rushed off the phone as she has other calls i was told i would get a call back and didn't
my world stopped , i cried ..it couldn't be real. my friend thankfully was on her way over...someone that understood...
i emailed the PT i had her email and phone number ...it was that type of relationship
this is really happening i thought...after years of horrible pt, being injured by one and this pt by devine intervention saving me literally giving me my life back
in a blink she's gone...ripped from my team, ripped from my life with no warning and no goodbye
the next morning i get three rapid fire texts ...wtf pt office...owner will be in next week, gave list of times ...some taken already so i jump on my phone and reply
and then i'm mad ...mad i wasn't called, mad at how it was mishandled ...they could have easily waited a day to text me when they knew what they planned to do with her patients they didn't ...they made it worse , they set me into a horrid flare
i got blunt and direct , i wanted my chart, i couldn't trust just one pt ever again i typed thru tears...i even said i hope the owner would agree to how my pt treated me
that nite almost at midnite the owner sends the first professional msg...i assume the same one she sent every patient , my name wasn't mentioned ... why not just text that and only that msg and not stress me out and make it all worse for two days?
oh i forgot how they want me to pay double for a new evaluation...as if it's on me that their pt quit
as of right now until i hear it from my pt i'm not so sure the reason given is valid ... regardless the way it was told to me is cold
did i mention when my pain is like this i'm supposed to limit texting and yet that's what the office is doing.
i feel like i have to walk on eggshells with the owner ...
there hasn't been a day since i found out that i haven't cried my eyes out. i think it would have been easier if the pt herself said hey, blah blah blah i'm leaving you in great hands...
because i've been injured , and made worse ...i'm in a panic ...who will i email when in a flare?
the kicker is i stayed in this state for my PT ... so now i'm planning on packing up and leaving
is this real? yes sadly it is
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